Browsing by Author "McKinlay, Stuart"

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Open Access
Exploring the Perspectives of Older Adults Living With HIV on Virtual Care: Qualitative Study
(JMIR Publications Inc., 2024-12-04) Kokorelias, Kristina M.; Valentine, Dean; Dove, Erica; Brown, Paige; McKinlay, Stuart; Sheppard, Christine L.; Singh, Hardeep; Eaton, Andrew D.; Jamieson, Laura; Wasilewski, Marina B.; Zhabokritsky, Alice; Flanagan, Ashley; Abdelhalim, Reham; Zewude, Rahel; Parpia, Rabea; Walmsley, Sharon L.; Sirisegaram, Luxey
Background As the population of individuals with HIV ages rapidly due to advancements in antiretroviral therapy, virtual care has become an increasingly vital component in managing their complex health needs. However, little is known about perceptions of care among older adults living with HIV. Objective This study aimed to understand the perceptions of older adults living with HIV regarding care. Methods Using an interpretive, qualitative, descriptive methodology, semistructured interviews were conducted with 14 diverse older adults living with HIV. The participants lived in Ontario, Canada, self-identified as HIV-positive, and were aged 50 years or older. Efforts were made to recruit individuals with varying experience with health care. Reflexive thematic analysis was conducted with the interview transcripts to identify prevalent themes. Results The identified themes included (1) the importance of relationships in virtual care for older adults living with HIV; (2) privacy and confidentiality in virtual care; and (3) challenges and solutions related to access and technological barriers in virtual care. These themes highlight the perceptions of diverse older adults living with HIV concerning care, emphasizing the fundamental role of trust, privacy, and technology access. Conclusions By embracing the unique perspectives and experiences of this population, we can work toward building more inclusive and responsive health care systems that meet the needs of all individuals, regardless of age, HIV status, or other intersecting identities.
Open Access
“They didn't think we'd live this long”: A qualitative exploration of older adults living with HIV perspectives on geriatric care in Ontario
(Wiley, 2025-05-22) Kokorelias, Kristina M.; Valentine, Dean; Eaton, Andrew D.; Dove, Erica; Su, Esther; Sheppard, Christine L.; McKinlay, Stuart; Brown, Paige; Singh, Hardeep; Wasilewski, Marina B.; Flanagan, Ashley; Zhabokritsky, Alice; Abdelhalim, Reham; Parpia, Rabea; Zewude, Rahel; Jamieson, Laura; Walmsley, Sharon L.; Sirisegaram, Luxey
Introduction Advances in human immunodeficiency virus (HIV) care have increased life expectancy, leading to more older adults living with HIV. This study examines older adults' perspectives on geriatric healthcare needs. Methods A community‐based qualitative study in Ontario, Canada, recruited some adults aged 50+ years living with HIV through quota and purposive sampling. Quota sampling was used to include individuals of different ages, genders and ethno‐racial backgrounds to capture a range of experiences. Data were collected via semi‐structured interviews and focus groups, analyzed using the Qualitative Analysis Guide of Leuven. Results Participants included interviewees (n = 14) and focus group attendees (n = 12). Four themes emerged: (1) lack of knowledge and access to geriatric care, highlighting service challenges; (2) healthcare providers' understanding of HIV and ageing, with stigma concerns; (3) role of social support networks for emotional/practical support; and (4) requirements for improved geriatric care, advocating provider education and greater social care access. Conclusions Gaps in geriatric care for older adults with HIV highlight stigma, access issues and the need for education, virtual care and tailored, inclusive healthcare solutions.
Open Access
Understanding the use of co-design methods for research involving older adults living with HIV: A scoping review protocol
(PLOS, 2024-05-30) Brown, Paige; Singh, Hardeep; Su, Esther; Sirisegaram, Luxey; Munce, Sarah E.P.; Eaton, Andrew D.; Zhabokritsky, Alice; McKinlay, Stuart; Kokorelias, Kristina M.
There is a growing population of adults aged 50 years or older living with HIV, facing unique challenges in care due to age, minority status, and stigma. Co-design methodologies, aligning with patient-centered care, have potential for informing interventions addressing the complex needs of older adults with HIV. Despite challenges, co-design has shown promise in empowering older individuals to actively participate in shaping their care experiences. The scoping review outlined here aims to identify gaps in existing co-design work with this population, emphasizing the importance of inclusivity based on PROGRESS-Plus characteristics for future patient-oriented research. This scoping review protocol is informed by the Joanna Briggs Institute Manual to explore co-design methods in geriatric HIV care literature. The methodology encompasses six stages: 1) developing research questions, 2) creating a search strategy, 3) screening and selecting evidence, 4) data extraction, 5) data analysis using content analysis, and 6) consultation with key stakeholders, including community partners and individuals with lived experience. The review will involve a comprehensive literature search, including peer-reviewed databases and gray literature, to identify relevant studies conducted in the past 20 years. The inclusive criteria focus on empirical data related to co-design methods in HIV care for individuals aged 50 or older, aiming to inform future research and co-design studies in geriatric HIV care. The study will be limited by the exclusion of papers not published or translated to English. Additionally, the varied terminology used to describe co-design across different research may result in the exclusion of articles using alternative terms. The consultation with key stakeholders will be crucial for translating insights into meaningful co-design solutions for virtual HIV care, aiming to provide a comprehensive synthesis that informs evidence-based strategies and addresses disparities in geriatric HIV care.