Browsing by Author "Wright, Kristi D."

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Examination of the utility of respite services on stress reduction for parents of children with attention deficit/hyperactivity disorder
(University of Regina, Graduate Students' Association, 2008-04) Ruzic, Tamara; Wright, Kristi D.; Stulberg, Shelley; Kaiser, Stephanie
Research suggests that parents of children with mental health disorders have higher incidences of stress, physical illnesses, mental illnesses, and substance use. Of particular salience to the current project are the needs of parents of children with attention deficit/hyperactivity disorder (ADHD). More frequent and intense parent-child relational disruptions are observed within families with children with ADHD than families without children with diagnosed disorders. Respite care is one of the community services that may maintain and enhance the functioning of families of children and youth with mental health disorders. The current project was designed to provide parents with indirect respite by offering a structured athletic activity for a group of 10-12 children (ages 7-12) with ADHD twice per week for 13 weeks. Parent/child demographics, levels of parental perceived stress, and child psychopathology were measured at baseline and at completion of program. Individual positive and negative targeted behaviours were recorded during each session. It is anticipated that participation in this program will result in (1) decreased levels of parental perceived stress; (2) decreased levels of child psychopathology; (3) decreased frequency of targeted negative child behaviours; and (4) increased frequency of targeted positive child behaviours. A recreational respite program was designed for a group of children with attention deficit/hyperactivity disorder (ADHD). It is anticipated that participation in this program will reduce levels of parental stress, as well as decrease levels of child psychopathology.
Open Access
Exploration of the Lived Experiences and Needs of Individuals with Adult-Diagnosed Cystic Fibrosis
(2023-11) Dollimount, Anna; Ram, Malina; Power, Hilary, A.; McKay, Corinne; Afseth, Niki; Genoe, Rebecca; Switzer, Heather; Tam, Julian; Wright, Kristi D.
Background: Most cases of cystic fibrosis (CF) are diagnosed in infancy, however rates of adult-diagnosed CF are increasing with 5-10% of CF cases being diagnosed in adulthood [1]. Our limited understanding of this subset of the CF population is based on dated literature [2-3] and an up-to date understanding of the experiences and needs of those diagnosed in adulthood is required in order to develop age-appropriate supports to navigate the disease [4]. The purpose of present study was to examine the lived experiences and needs of those diagnosed with CF in adulthood from multiple vantage points (i.e., those with CF and CF health care providers). Methods: A qualitative research design was used. Participants (n = 16) included adults with CF (n = 8, Mage = 41.71, SD = 14.47), and interdisciplinary CF health care providers (n = 8, Mage = 46.29, SD = 7.93) recruited from CF clinics and chapters in Western Canada. Participants completed a brief demographic questionnaire and a semi-structured interview. Individual interviews ranged from 30-60 minutes in length. Interview questions included general introductory questions about informational and service needs, as well as specific questions about the benefits and drawbacks of an Internet-based resource. All interviews were audio-recorded and transcribed verbatim. Results: A thematic content analysis was completed, and five major themes were uncovered: (1) CF information needs (i.e., limited information available, limited understanding of CF); (2) challenges of having CF (i.e., diagnosis challenges, treatment challenges, social challenges); (3) emotions related to CF and coping (i.e., feeling overwhelmed, angry, worried, guilty); (4) health service needs (i.e., access, physical health, mental health); (5) online resource considerations (i.e., benefits, drawbacks, key components). Conclusions: The results highlight that those diagnosed with CF in adulthood require tailored information in crucial areas (i.e., disease knowledge, challenges, emotions, coping strategies, resources). The results also indicate that individuals with adult-diagnosed CF are in favor of information provision via an Internet-delivered resource. Information gathered from the study will be employed to inform the development of a tailored resource to address information and support needs. Acknowledgements: Supported by the Social Sciences and Humanities Research Council (SSHRC) and the SK Centre for Patient-Oriented Research (SCPOR).